Posts

Showing posts with the label spina bifida

What it was like to grow up in the 80s as a disabled child

When I was born I was diagnosed with Spina Bifida. After surviving the 3 weeks that my parents were told I wouldn't, my parents began to realise they had a fighter for a daughter.  I have also been informed that at this time my parents were asked whether they wanted to put me up for adoption. My parents expressed how horrified they were by this question and never had to question whether keeping me was the right thing to do. This brought them strength to carry on and do their best by me. Due to my ill health, the hole in my back was not closed up immediately, as a result, this led to Hydrocephalus also developing. The first 5 years of my life were challenging for the whole family not just for me. I have an older brother who also had to learn to grow up quite quickly and who also had his own health problems. My parents recall a time when I was in one hospital and my brother was in another. This led to the family being split in two for a period of time.  My shunt bein...